Bad Breath Halitosis Forum

So so sorry to hear this missjj. There are some people with tmau who manage to alleviate their symptoms a bit in various ways, but it's not easy. I haven't managed it myself but there are stories of hope from other people who are able to manage their odour with a specific diet and/or supplements. I'...

UK TV programme 'This Morning' is looking for a case study of someone who has been diagnosed withtrimethylaminuria and can talk on live TV about how it affects their life.We arrange all travel and can pay a fee. It will be for a Tuesday show overthe next few weeks. It would be brilliant if you could...

http://www.bloodbornebodyodorandhalitosis.com/search/label/MEBO%20Supplements%20for%20Africa%20Drive Maria of MEBO has set up a system which enables sufferers in some African countries to access supplements which may help them to control their odours. Any small donation to this project via Paypal wo...

At least 15 malodour sufferers are required to sign up with an e-mail address to establish the amazing Black Swan research initiative. NO donations are necessary to get this project up and running - just one minute to sign up. Details are written on the MEBO site: 'The RE(ACT) effort can be supporte...

FMO3 enzyme tablets are not currently prescribed to TMAU sufferers, though there are rumours that such a remedy exists at an exorbitant price. I wish it could be as simple as taking an FMO3 pill. As a TMAU sufferer whose main odour source is BREATH, I would take it to see if it could help. Current t...

Hi all A non-judgemental meet up where everybody is welcome. You can talk about whatever you like (odour or non-odour related); you can cry if you want; you can laugh, sing and dance if you want; you can discuss raising awareness, or you can just get drunk - whatever you like. And, if the weather is...

You're absolutely right! But the media are the media, and they say what they want. They insist on the 'rarity' of odour conditions because that's what they want to believe, I suppose. Poor Ellie insists on telling them it's a misnomer to refer to TMAU as fish odour syndrome but they still ignore thi...

http://www.mirror.co.uk/news/weird-news/ive-suffered-14-years-smelling-3380410 Hi all Ellie has not only done the above article for The Mirror (UK national paper) but she is also on BBC Radio 5 live tomorrow (Monday 7th April 2014 UK) at 8.40. Tune in if you can! Great job, Ellie. Brilliant work on ...

I would just like to encourage everyone to support Lisa's petition. http://lisamariemd.wix.com/borc#%21campaigns/c1ba5 The link to sign it is below. I think it is relevant to anyone who suffers from malodour - the source of the malodour is irrelevant because our suffering is the same, so let's get t...

It would be a good gesture if people from our community e-mailed the MRC to express our thanks for the TMA research grant. This would still be a raising awareness campaign and an excellent follow-up to the original campaign requesting the grant. Contact e-mails are: linda.willmott@headoffice.mrc.ac....

Thanks to everyone who took part in e-mailing the UK Health MPs. The reply I received is below: Thank you for your correspondence of 28 November about Trimethylaminuria (TMAU). I have been asked to reply. I appreciate your concerns about the strategies in place for dealing with rare diseases such as...

Thanks to everyone who took part in e-mailing the UK Health MPs. The reply I received is below: Thank you for your correspondence of 28 November about Trimethylaminuria (TMAU). I have been asked to reply. I appreciate your concerns about the strategies in place for dealing with rare diseases such as...

Mac, I really hope other people follow your lead and e-mail the MPs. Raising awareness is crucial. This is the link for the brief form you will need to complete: http://www.info.doh.gov.uk/contactus.nsf/memo?openform E-mail addresses for the secretary of health (Mr Jeremy Hunt) and the shadow secret...

Hi For those of you willing to send a message to Jeremy Hunt MP to raise awareness of metabolic malodour disorders, perhaps focusing on the potential discrimination against sufferers within the workplace/education system, and requesting clearer disability legislation, this is the link for the brief ...

This link was sent to me by an official from the MRC. The grant is officially announced.

http://gtr.rcuk.ac.uk/project/772B5BB8- ... BC7F8369DF

So far, nearly £1000 has been raised on the MEBO site