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Belgian documentary to raise awareness

Another possible cause of bad breath.
malory
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Belgian documentary to raise awareness

Post by malory »

I found this post on Rareconnect sit if anybody is interested:

New Belgian Documentary - Looking for brave people who want to tell their story
Post content: Hello everybody,

My name is Flo and I am an editor at the Belgian television production company Sputnik Media.

Currently, we are working on a new documentary. The documentary is kind of a reaction against the aesthetic perfectionism that is prevalent in our society. We want to eliminate prejudices by informing people about existing conditions and we want to make people aware of their often wrong impressions about people based on their appearance.

Therefore, our host (a well-known Belgian public figure) will conduct an interesting experiment: although she is quite concerned about her looks and appearance, she won't clean herself, won't wash her hair and body, won't use any cosmetics etc during a whole month.

During that month, she will also meet some very interesting people with intriguing stories. Like that, we want to inform people and try to reduce the erroneous preconceptions about certain conditions.

Therefore, we would love to arrange a meeting between our host and someone with TMAU, if possible, someone from (or near) Belgium... (Nonetheless: we are interested in EVERY story!)

Do you want to share your story with us? Do you want to help us by introducing us to others or to TMAU specialists? Or do you have any questions, doubts...? Please don't hesitate to contact me: I will be happy to help you!

Kind regards and I wish all of you all the best,

Flo
[email protected]

Post url: https://www.rareconnect.org/en/communit ... om=modlink


NOTANYMORE
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Post by NOTANYMORE »

Atrial has TMAU so now is her chance to be a star!
Atrial
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Post by Atrial »

NOTANYMORE wrote:Atrial has TMAU so now is her chance to be a star!

Two people from this site met few weeks ago and posted that they could not smell each other That can only happen if they are producing same compound.

if someone does not have bad gums,tonsills or adenoids and still have bb then there is 99% chance it's tmau.

Once you finish with your archenemy mucus let me know.
NOTANYMORE
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Post by NOTANYMORE »

Atrial wrote:
NOTANYMORE wrote:Atrial has TMAU so now is her chance to be a star!

Two people from this site met few weeks ago and posted that they could not smell each other That can only happen if they are producing same compound.

if someone does not have bad gums,tonsills or adenoids and still have bb then there is 99% chance it's tmau.

Once you finish with your archenemy mucus let me know.
If two people can't smell each other it's because they don't or didn't have halitosis at the time. There is no need to add anything else to the equation.

Admit you have halitophobia Atrial. Set yourself free!
halitosisux
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Post by halitosisux »

Interestingly though, whenever I've ever seen footage of people with TMAU, even people around them at the time who don't have TMAU (such as family or interviewers) can't ever seem to smell anything either.

That can only mean that the TMAU is either intermittent or happens to be at low severity at that moment.
Atrial
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Post by Atrial »

If you don't believe me meet someone from this site in your area and you will not be able smell each other.

Anyone can speculate the only way you will believe it is if you experience it yourself.
Corpsebreath
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Post by Corpsebreath »

Atrial wrote:If you don't believe me meet someone from this site in your area and you will not be able smell each other.

Anyone can speculate the only way you will believe it is if you experience it yourself.
Atrial, like Notanymore said, if two people from here can't smell each other, it's because they don't smell. They're halitophobics. The smell only exists in their heads. They have this delusional idea that every little movement someone does is a direct response to their smell. When in reality it didn't even have anything to do with smell to begin with. To someone with genuine halitosis like me, reading about all these "reactions" is laughable. For example, the "nose touching" so many on here keep going on about. It's nonsense, it has nothing to do with the way they smell.
mak_123
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corpse

Post by mak_123 »

corpse you are wrong about nose rubbing. I have nasal + mouth odor and when i speak in front of someone they look at my eyes and touch nose with their hand. But i've read about coughing, i 've never experienced it. maybe coughing is a symptom of a halitophobia :roll:
whatdidido
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Post by whatdidido »

To claim that someone like me has halitophobia --i met with a member on here and we could not smell one another-- is not fair. That would mean that the confirmation from my own ENT who is among the top doctors in my city, the name calling, comments, friends not wanting to be friends anymore, the tears, the prayers, quitting two extremely good paying jobs, and any person i talk to backing away ten feet or just full on covering there nose in front of me waiting for the moment that i stop spewing whatever this smell is thats coming from my mouth among a plethora of other things are made up. This is not my imagination at work, i was a ****ing normal person for 23 years of my life and now I've been dealing with this for the past three years. Our noses become extremely accustomed to the odours that our mouths/sinuses/throats produce from what I'm assuming in my case and the woman i met with is sulphur compounds. If i can't smell someones breath that has chronic halitosis i can only attribute that to the fact that we both have become accustomed to these compounds. But to even suggest that this is all made up and is merely a phobia is extremely inconsiderate especially when you don't even know what the cause of your bad breath is or wtf is going on with all of us on this site.
Atrial
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Post by Atrial »

Corpse Unless you have met someone from
This site and experienced it yourself keep your silly theories to yourself.
StinkBomb
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Post by StinkBomb »

whatdidido wrote:the confirmation from my own ENT
whatdidido, did your ENT confirm that he/she could smell your bad breath? For that matter, has anyone? All the other things (nose rubs, coughing, comments, backing away) is really just an interpretation. You really need for someone to directly tell you to your face that you DO have bad breath.

That's where I am right now. I get reactions every time I speak but have not actually been able to get an actual confirmation from anyone. I really think that it is easier for someone to just lie than to deal with the awkwardness of telling you that your breath stinks. I am in the process of trying to meetup with others from this site but I'm not sure it looks promising. Many others have met before and don't smell anything. Maybe your right ... that people who have bad breath can't smell others with bad breath. Maybe the answer is to just ask people who DON'T have bad breath.

I'm so desperate that I am actually thinking of going into the city with a clipboard and stopping people, acting like I am doing a survey. Something like, "Hi, I am doing a survey based on a study of halitosis. We have been asked not to brush our teeth and have people rate our breath on a scale from 1 to 10. It will only take 10 seconds and you will be compensated $1 for you input."

What do you think? Am I nuts?
StillHoping
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Post by StillHoping »

Perfectly said whatdido!!!

Corpse, I WISH I was halitophobic, how awesome would that be lol. But no I'm not, as my bb has been confirmed by some people. I truly do believe that some ppl can smell it/ and others cant because I don't get reactions 100% of the time from every single person I come into contact to.
2012: Wisdoms remov
2015: Tonsils+adenoids remov
2017: TMAU1 & 2 Negative
2019: Internal biopsies normal
2019: Completed SIBO treatment
2020: DigEnzymes help but side effects
+ low fodmap/GERD diet also help
whatdidido
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Post by whatdidido »

Stinkbomb: My ENT confirmed i had bad breath and even tried to tell me that for some, there is nothing that can be done to cure it. My brother has made a few comments and i finally sat him down and asked him, he said my breath smelled fecal and has for a couple years now. I have had friends make comments, one claimed my breath smelled like a skunk. I have lost three 'best friends" as it is now embarrassing to even go out with me or be seen with me. I agree that people touching their noses doesn't mean anything but I'm also not an idiot. If I'm talking to somebody and they plug their nose right in front of my face until i stop talking and then do it again once i open my mouth again...thats not being paranoid. If I'm talking to someone one moment, and they do everything they can to get at least ten feet away from me, i am not paranoid. I am not making up or imagining all these terrible things that are happening in my life due to having bad breath. This is the worst thing that has ever happened to me, i would rather have a life threatening terminal disease. I would at least be accepted that way.

Lol honestly, thats better then anything I've been able to come up with! Like you said, people would rather lie then be uncomfortable so at least you would get honest answers. But again, i think some people are able to smell it and others aren't. I smell bad breath from strangers all the time but a friend will make a comment about someones breath and i won't have noticed or thought that persons breath smelled. This is all confusing shit, and no one has the right answer to it, as I'm sure we all have different cases and circumstances. So again, for anyone on this site who believes just because i wasn't able to smell someones bad breath and they weren't able to smell mine, means that neither of us have bad breath and we have halitophobia...just stop! Your wrong! This site is meant to be a place where we can get support and feel ok for the time being, not to read that I'm full of shit and imagining my symptoms.

Stillhoping: Wouldn't that be great if we were halitophobic! Id be able to sleep better at night knowing that people aren't making fun of me and automatically assuming that I'm dirty and unhygienic.
Corpsebreath
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Post by Corpsebreath »

Whatdidido. I'm sorry i offended you. That came out wrong from me. Surely it's possible that two people can't smell each other even though they do have halitosis. I didn't mean to say that it's true in every case, only that it's a possibility. I don't think you're halitophobic. But i do think that some people here are. Halitophobia is a real thing, and when it gets hold of your reality, it becomes your reality. I know i have genuine halitosis, but i also know i have mild case of halitophobia. It used to be worse and i know how it can warp the world around you. It's similar to how someone who is schizophrenic may be convinced that they are being spied on by aliens or the FBI, and no matter how much someone tries to talk them out of it, they still "know" it's true. One guy from here claimed that someone 100 meters away from him was reacting to his smell because he coughed three times. And to someone with halitophobia that may sound reasonable, but to anyone else, it sounds like insanity.
somethinstinks
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Post by somethinstinks »

Corpsebreath wrote:To someone with genuine halitosis like me, reading about all these "reactions" is laughable. For example, the "nose touching" so many on here keep going on about. It's nonsense, it has nothing to do with the way they smell.
how do you know you have genuine halitosis?
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