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I can't stand it.

Anger management part of the forum :), where you can express anger, sadness, sorrow etc.
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AW
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I can't stand it.

Post by AW »

I've just started school yesterday. The whole time I was under so much pressure. I have to sit so close next to people and such. Before I went yesterday, I began to cry. I just broke down. Thinking of people saying I stink all the time. Like I don't shower or something. I get angry too, that people think you don't shower just because you have bad breath or even constant body odor. Some people are just so stupid. Not to mention when I just lay in bed at night I cry about how my life is ruined. I didn't even get a chance to live it, being a young person and all. It's really depressing and angering at the same time.

Sometimes I do just get really angry or I just break down and cry. I find myself not even smiling anymore. I can't bring myself to it. I could imagine people with bad breath must not smile or laught a lot. I cry because I feel that I have to live with this for the rest of my life. You try several things at a time hoping you'll get rid of the bad breath and it doesn't go away. It can drive a person mad how it doesn't go away. Also it can drive a person mad when people say you smell and stink all the time. I wish at times I could die from this disease. Why can't we just die from it? It would be so much simpler. You'd think bacteria growing where ever it grows in the region of your mouth would kill you. I mean, the smell is almost as if we literally ate shit. Which you could possibly die from an infection if you did. I hope that happens to me. If there's no set cure yet, the only way out is natural death. I will not commit s*****e because that's wrong. But natural causes are fine with me.


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jess
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Post by jess »

Trust me Aw, I know exactly how you feel. I'm not taking any classes this semester but I'm gonna have to go back to school pretty soon and that scares me. I've lost so much because of this problem. I ended up going to school part-time, I've failed two classes, and now I'm three years behind in my major, all because of this problem. But you know what, I'm not gonna let this stupid bb keep me from finishing school. I know it's gonna be hard but one way or another I'll graduate. So my advice to you: hang in there, be strong, cause without an education, it'll be much worse.

Also I must say that all of us, bb sufferers, we're not doing enough. It's true that we've tried all kinds of products, but we have to realize by now that they're not working for us, therefore we need to do something else. For example, for the past months I've been writing to Oprah telling her how this problem has been ruining my life. I haven't got any response from her yet, but I trully believe that if many of us send her a lot of email messages every day regarding this issue, we will get an answer and maybe some kind of help. It's very embarrassing telling people about this condition, but we have to pass that and somehow raise some awareness to the public concerning this problem. Let's stop sitting around waiting for a "cure" , instead let's try and do something new.
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tsmall
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Post by tsmall »

I don't think we should expose our selves on Oprah, especially since she does not suffer in the same way. Plus it just draws more attention to us in our public lives. When people see us they will be reminded of the show, or vice versa... The truth is, with out a cure, all we have is pain, whether we speak publicly or not... People are terrified of the humiliation; it triggers serious depression.

When people see the show, they will just laugh and mention people that they know with BB, including you and me... Unless we go on with a cure, it is senseless. Imagine being in a room with people when the talk show comes on speaking of your humilating and painful issue; awkward. Unless you are prepared for it, it could be inwardly disasterous. It's kind of like stigmatizing your self.

I commend you for finding the strengh to live your life, and keep fighting for your education; we CAN NOT let this distroy us. My way of holding on is by holding God's unchanging hand and embracing Jesus Christ. (He is healing me from the inside out.)

T in CT
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tsmall
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Post by tsmall »

AW, Jesus is the way, the truth, and the life. Run as fast as you can into his arms, he will strengthen you. He is our only hope. Trust him...

Sincerely - T
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Post by blue10 »

jess wrote:Trust me Aw, I know exactly how you feel. I'm not taking any classes this semester but I'm gonna have to go back to school pretty soon and that scares me. I've lost so much because of this problem. I ended up going to school part-time, I've failed two classes, and now I'm three years behind in my major, all because of this problem. But you know what, I'm not gonna let this stupid bb keep me from finishing school. I know it's gonna be hard but one way or another I'll graduate. So my advice to you: hang in there, be strong, cause without an education, it'll be much worse.

Also I must say that all of us, bb sufferers, we're not doing enough. It's true that we've tried all kinds of products, but we have to realize by now that they're not working for us, therefore we need to do something else. For example, for the past months I've been writing to Oprah telling her how this problem has been ruining my life. I haven't got any response from her yet, but I trully believe that if many of us send her a lot of email messages every day regarding this issue, we will get an answer and maybe some kind of help. It's very embarrassing telling people about this condition, but we have to pass that and somehow raise some awareness to the public concerning this problem. Let's stop sitting around waiting for a "cure" , instead let's try and do something new.
i just emailed oprah also. when i came on here and read your post i was so happy i wasnt the only one emailing her about this problem. she helps a lot of people thats why i emailed her. i think everyone on here should at least email her once or often just to see what would happen but not only her but other places to.
me
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jhon

Post by me »

Well I have the same problem i was supposed to start school 2 weaks ago but i didn't,now my parents gave me an ultimatum and told me that i have to start tomorrow. Well the worst is that i have to start in a new school im so nervous that i think im gonna explot. I went to a thousand doctors i have try every thing i had every study that can be done and the only thing doctors came out with was acid reflux. Im currently on prevacid also glycolax and colace all this to treat my stomach because i already eliminated the chance of my poop breath beeing from sinuses or anything else realted with nose or thorat. A couple of months ago i started posting the question of what could be the cause of this problem on every forum, i didn't really get an answer but at least it's making people and doctors aware of the disease.
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jess
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Post by jess »

tsmall wrote:I don't think we should expose our selves on Oprah, especially since she does not suffer in the same way. Plus it just draws more attention to us in our public lives. When people see us they will be reminded of the show, or vice versa... The truth is, with out a cure, all we have is pain, whether we speak publicly or not... People are terrified of the humiliation; it triggers serious depression.

When people see the show, they will just laugh and mention people that they know with BB, including you and me... Unless we go on with a cure, it is senseless. Imagine being in a room with people when the talk show comes on speaking of your humilating and painful issue; awkward. Unless you are prepared for it, it could be inwardly disasterous. It's kind of like stigmatizing your self.

T in CT
I understand your point, but I don't intend to just go on The Oprah Show sitting in front of hundreds of people and say: "I just want you all to know that I have bb". My idea is to tell her that we're suffering from a medical problem that's destroying our lives, that we don't know the cause of it, and that this condition is far more complicated and serious than people think. We would tell her that thousands of us are going through the same nightmare, that we've done everything possible to get rid of the problem without success, and no doctors, specialists, or dentists are able to help us, therefore we're asking her for help to get in contact with scientists or researchers in this field to see if we can get a solution for this problem.

If she answers us we don't have to go in front of an audience, we can talk about the problem anonymously. No one would even know our identity. People have done that before. Oprah is a powerful woman who has helped and I'm sure is willing to help people as much as she can. It's up to us to get serious about seeking help regarding this condition in any way that we can.

In medical mysteries on abc, only two women went ahead and talked about TMAU, and they don't even have a cure for it yet. There are hundreds of registered bb sufferers that I know of. If people hear about our common problem and our good daily routine, maybe the'll reallize that this is not an hygiene issue, but a medical one. So it's up to us. We can keep trying products until we have nothing else to try, or we can look for real help.
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Venting

Post by helen »

I know how all of you feel. I havehad this condition for at least 10 years and as time has passed it seems that the bb has gotten worse. I too wish I would just die from this disease, it would be so much better than to have to live in this world with all of it's cruelty. I was going to a counselor for awhile about this she specialized in chronic diseases. when I first started I had just finished a round of probiotics and diflucan and I think it really did help some for a while. Anyway, she said that she didn't smell anything at first. But I did notice that after awhile she began holding her hands over her mouth etc., but she never did tell me that it was because of bb. I finally quit going to her.

I try to get out there and meet people, I have some luck for a little while but then people start to pull away. Maybe they give me the benefit of the doubt with the bb but after awhile they just stop calling or wanting to do anything with me. I used to be so popular growing up. I had tons of friends. this happened and my life has become a nightmare.

My mother and sisters make fun of me behind my back. They think that I don't hear them but I do. I wa reading a thread that I can't find right now about how people would like to have a relationship. Well I too would love to. Someone who I know keeps telling me all my problems will go away if I find a man. Intead of telling him yeah right I am tired of loosing relationships because of bb I just say that I am done I don't want to be hurt anymore. but I am soo lonely. I am glad that I finally found others that are like me. I thought literally that I was the only one who has this kind of problem.

I haven't met anyone else with this problem. Oh sure occassionally I smell someone elses breath too but they don't seem to have it all the time, like I do. Wish I could just brush my teeth and viola the bb is gone. Or pop a piece of gum in my mouth and boom it's gone.

I have tried soo many things. Veneers, taking out all the mercury, special toothpastes, mouthwashes I must have 5 different kinds in my bathroom, gum, candy, tablets, stuff off the internet, vitamins, liver detox, stopped smoking, alfalfa, chlorophyll, sprays, I have spent so much money and yet nothing has cured it. :oops:

I have given up on trying anymore. I don't know how long I can stand this. I think of Job and wonder why God has allowed this to happen to me. What can I possibly learn from all of this?

Another thread mentioned that they had a terrible childhood (loveless) well I fit into that category too. Does the severe stress cause bb?

I know I am writing a lot but this is the first time that I can be honest about my feelings really honest. It's all overflowing right now. thank you Jimi for creating this forum. Must have taken alot of courage to do so!

I will write to Oprah too but I won't put myself out there to be ridiculed by the whole world, it's bad enough that the people I wor with and my family ridicule me. but I agree somehow it's got to be brought out how much we suffer. How about Dr. Phil maybe he can call attention to the psychological affects.... he seems to get more attention than Oprah these days!
Anyway, thank you for being here.
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AW
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Post by AW »

Sometimes I think we were cursed in this life. But maybe we will get a great afterlife. A type of afterlife where we can get anything we want our own way. I wouldn't mind that. We just have to endure this for now. The act of bad breath is trying to detain us from the nice things in life. Relationships, friends, etc. However, these are nothing if we can get whatever we want in another life of some sort.
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Post by austuser »

I know it's easy to revert to that kind of thinking, but it does not help. Dont become complacent. If Oceanside were complacent he never would have had the drive to contact jill hart and get the ball rolling and we would not be where we are now, which i think is a pretty ****ing big step forward.

An afterlife where everything is perfect implies the presence of a higer power, which implies a godlike being who is compassionate and merciful. Giving some people good looks and nothing else...i can live with that. Good looks and money.......that too. Good looks, money, a full head of hair, good breath and no genetic disposition to depression or any other mental illness, while some poor bastard has to live in poverty with an ugly face, no hair, constant debilitating depression AND poison breath? God is a sick son of a bitch and praying to something which helpless people created to make their lives meaningful will do nothing.

Sorry, i guess you can say im an athiest true and true. no offense.
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