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Taking the idea of 222chick and other member, i think it would be very helpfull to join us more and meet up ¨in the real life¨ more often, i think this could give us more certain about some doubts that many of us have about bb and could be more easy to do some real activation about this problem that we are not doing right now...(like search for new doctors, scientist that could help, get start to send letters again, see the possibilities of contact some laboratories that could do research in our group if we can get the way of making them see that this could be a very good business for them...., go to meet doctors in groups of two or three persons, not just alone with shame.....etc....) or just talk about this problem freely with someone that you know that understand you....that is not a small thing...
so the idea would be that everyone says were are they from so everyone could know if they have some ¨neighbour¨ close to them.....
Group meeting at the doctor is a great idea! That way they will have more interest finding the cure, and the discussions among doctors would start quickly; "I had 4 patients today that came together and they all had bb, but I couldn't find anything wrong with them, do u have any sugestions?"...
I'm from Slovenia! (yea its a country! )
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