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Update & Gums
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- Advanced
- Posts: 168
- Joined: Thu Aug 26, 2010 9:49 am
- Location: United Kingdom
Update & Gums
I was a regular on this forum for a while but I’ve been absent for some time. I guess that’s kind of selfish, for which I’m sorry. My BB problem reduced greatly to the extent that I don’t think about it much nowadays.
The cause of my problem was severe dry mouth. I learnt from knowledgeable folk on this forum that mouthwash was not a good idea. Once I stopped using mouthwash my BB reduced significantly. I also started taking Salagen to increase my saliva flow which also really helped. Now my saliva flow is thankfully back to normal and I don’t need to take Salagen anymore.
Unforunately though because I had such a long period with a dry mouth this really affected my gums which are very red. They don’t tend to bleed so I don’t think they’re giving me BB but I am concerned that they will deteriorate further in the not too distant future and I’ll, once again, have to deal with all the social problems that BB brings. But for now at least I’m happy, able to concentrate and perform well at work and enjoy a good social (and dare I say sex) life.
Anyway, I just thought I’d drop in say hi, give you this quick update and let you all know that I know how difficult it can be to deal with and get rid of BB.
Stay strong x
If you didn't know it and are interested, we have a secret group on facebook now; only members on the group can see who's in it and all the activities. We can chat to each other there, and it's great to see some of the faces of the people here and not feel like we're talking to a wall.
We're all normal people with a bb condition, and we encourage you and more members to join us. Hope to see you there!
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- Sheriff
- Posts: 441
- Joined: Tue May 21, 2013 4:29 am
- Location: Calgary, AB
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- Sheriff
- Posts: 441
- Joined: Tue May 21, 2013 4:29 am
- Location: Calgary, AB
Unfortunately, he said he would not issue me a prescription until the underlying issue is determined of what is causing the saliva blockage - so I am referred to see another oral specialist. I'm seriously hoping this next doctor gives me the salagen, so I can find out once and for all whether my problem is due to severe dry mouth!!
2015: Tonsils+adenoids remov
2017: TMAU1 & 2 Negative
2019: Internal biopsies normal
2019: Completed SIBO treatment
2020: DigEnzymes help but side effects
+ low fodmap/GERD diet also help
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- Sheriff
- Posts: 441
- Joined: Tue May 21, 2013 4:29 am
- Location: Calgary, AB
He said there's 3 possible causes; Xerostomia, Sjogren's syndrome or an autoimmune disorder. He doesn't think its Xerostomia or Sjogrens Syndrome because I don't take any crazy meds and because I don't have dry eye problems. Soo he is sending me to get some blood work done to find out if there is something wrong with my immune system.
Aka back to a waiting game until the blood test results come out . ugh I seriously hope he does give me the prescription after everything but he says he is hesitant to do so because it comes with side effects. I honestly don't even care cuz I would rather any freakin side effect over BB if this turns out to be my problem!
2015: Tonsils+adenoids remov
2017: TMAU1 & 2 Negative
2019: Internal biopsies normal
2019: Completed SIBO treatment
2020: DigEnzymes help but side effects
+ low fodmap/GERD diet also help
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- Site Admin
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- Sheriff
- Posts: 441
- Joined: Tue May 21, 2013 4:29 am
- Location: Calgary, AB
2015: Tonsils+adenoids remov
2017: TMAU1 & 2 Negative
2019: Internal biopsies normal
2019: Completed SIBO treatment
2020: DigEnzymes help but side effects
+ low fodmap/GERD diet also help
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- Sheriff
- Posts: 441
- Joined: Tue May 21, 2013 4:29 am
- Location: Calgary, AB
But he gave me the prescription for Pilocarpine [Salagen], I'm glad I can FINALLY try this out and rule it from my list. I will begin the meds tomorrow and in addition; I will be starting oral probiotics. Will report back in about a month if I notice any difference, fingers crossed!!!
2015: Tonsils+adenoids remov
2017: TMAU1 & 2 Negative
2019: Internal biopsies normal
2019: Completed SIBO treatment
2020: DigEnzymes help but side effects
+ low fodmap/GERD diet also help