It's been so loong

[ThinkPositive]

I was on this site from 2014 to 2017 desperate to find the solution. I lierally became suicidal at 19 but anyways I'm 23 now working in lab. My anxiety is so high and im a bit paranoid. My coworkers are nice to me im just extremely shy and probably come across as arrogant. I wish i could be more outgoing but its hard when yu dont want ppl to smell ur breath.anyways
I was diagnosed with tmau, the folowing day i got a tonsillectmy(?), septum fix blah blah. The absolute worst awful recovery weeks ever the back of my mouth felt like shards.
So with tmau i went on the low choline diet managed eight months of it, then went back to meat. Before the diagnosis i was taking so many pills zinc kelp chlorophyll cholostrum charcoal probiotics b2 vit. So much that probably made it all worse.
I decided to stop and see how that goes and my smell decreased i dunno. I think my anxiety makes everything worse in my head and manifests physically.
I have the same symptoms bad breath from mouth and nose, occasionally smell a strong like metallic gone bad smell from mollars. Mucus from throat is not a lot but its there. Occasional blood taste/metallic from mollars. Everything from my mouth goes into my nasal passages.
I have no clue if recolonising gut bacteria could help me as i was diagnosed with tmau in 2017 but my values dropped to "normal" within a couple of months so i was discharged (NHS).
Im gonna see my dentist this friday shes bringing in another dentist for a second opinion
We'll see how it goes

[letsgetcured]

I know that feeling, trust me. I've always been an introvert but as I get older, I feel the need for more interaction with people but this condition is so crippling that I feel like I can't be the person I would be if it weren't for BB. I'm pretty much an isolated introvert against my will at this point. I also do come off as arrogant because I try to overcompensate in other areas (e.g. expensive clothes, fit body, good grades, etc) to make up for BB but then when people try to talk to me, I push them away and it gives off "you can't sit with me" vibes. Some people get that I'm just really shy but others misunderstand me.
I do agree that anxiety makes it worse but at least in your case, you work in a lab where you're not dealing with people. Was that a decision you made based on your condition or was that something you always wanted to do? I'm a soon to be nurse and although I'm really excited about it, the constant interaction with patients and their families in my face for hours on end just frightens me...but honestly, I'd rather do what I love to do and just be uncomfortable while doing it than to do something I hate just because it makes living with my condition less of an issue.

[space]

ThinkPositive, have you already tried having a panoramic xray? Do you have any impacted wisdom teeth? I read an old thread here that wisdom teeth can cause both mouth and nasal bb (especially if its the upper molar)

[ThinkPositive]

My dentist said like 2 yrs ago had an impacted wisdom tooth. Went to see a specialist and even told him about my BB. But he said cus its near a nerve and doesn't bother me much, that he wont operate.

[ThinkPositive]

Ive been fairly positive about my situation in late 2017 to 2018 because of the neg tmau results and just the fact i was able to a guy and he never reacted as if i smelled we were pretty close/intimate. So i thought things were fine. But now in a workspaccw where i see ppl regularly im starting to see every little thing as a reaction, even when i talk ans no one scratches their nose or whatever. The higher my anxiety the worse bb gets.

[IrishSkippy]

Think Positive - I had a impacted wisdom and a dentist said the same thing. I want to another dentist who was sound mad referred for a panoramic X-ray and I got it removed by specialist. Most high street dentist won’t operate on something tricky like that but will refer. If it’s impacted - it must go.

[space]

Good thing I found a dentist whose specialization is impacted wisdom teeth surgery. But the cost is really expensive. I opted to remove mine since realizing that the back molars produce the most smell when flossing. Then I got the panoramic xray, and all of my 4 third molars are impacted. It seems like they are pushing my other molars, and these parts called flaps can collect too much bacteria also producing the smell.

In that old post, the poster whose last update was he was already cured said, bb from wisdom teeth issues can fill up a room, smell travels meters away, and I'm thinking if its like an infected or smelly flesh then yeah it does make sense and also he said it can be chronic, which also makes sense since it takes years for the wisdom teeth to form. But this only applies to the ones with impacted and they smell. Others have normal wisdom teeth, erupted healthy and normally.

[ThinkPositive]

So I just finished my dental appt, there is nothing wrong with my gums or teeth. But dentist referred me to a consultant anyway. Maybe theyll do the panoramic xray.
What really bothers me is not being able to pinpoint the source of the smell. Its in my mouth and nose for sure, i have a very good hygiene, tonsils removed and everything.
The only things really now is gut bacteria and tmau. Im gonna see my GP to talk about a possible gut microbiome test.
I have this feeling in my mouth (like a film, on my teeth) that whatever i eat just lingers and maybe bacteria eat up food particles (which is normal) but if theres an imbalance between good and bad bacteria the odorous products are more offensive and long lasting compared to normal oral bacteria ratios
Could gut bacteria also affect overall oral bacteria??

[winter]

Good thing I found a dentist whose specialization is impacted wisdom teeth surgery. But the cost is really expensive. I opted to remove mine since realizing that the back molars produce the most smell when flossing. Then I got the panoramic xray, and all of my 4 third molars are impacted. It seems like they are pushing my other molars, and these parts called flaps can collect too much bacteria also producing the smell.

In that old post, the poster whose last update was he was already cured said, bb from wisdom teeth issues can fill up a room, smell travels meters away, and I'm thinking if its like an infected or smelly flesh then yeah it does make sense and also he said it can be chronic, which also makes sense since it takes years for the wisdom teeth to form. But this only applies to the ones with impacted and they smell. Others have normal wisdom teeth, erupted healthy and normally.

Did what he eat affected the intensity of his BB? Assuming he flossed and blushed his teeth properly.

[space]

I think the thread where I've read about the wisdom teeth was from poster "Cured"(junior), the other one was from poster "Attraction"

[space]

Here I found the link of his old thread:

viewtopic.php?t=1358

[simple]

Hi Thinkpositive, I read that people have different sensitivity in terms of smelling TMAU patients, a minority don’t detect the smell. Also, from reading research studies: it was mentioned several times that false negative results for TMAU are very common. They can differ significantly throughout the day and throughout the menstrual cycle (hormones affect it), so a once in a month/year test is not reliable even if it’s negative! I doubt that your TMAU went away for a while, likely your boyfriend couldn’t smell it in the first place.

Also, do you know what the smell is like? I read from research that TMAU can manifest as isolated halitosis without body odour, with the breath smelling in different ways, such as sulfurous or fecal (not fishy). So, I was wondering if that is the case for you?

I can’t seem to be able to insert a screenshot of the sample of the study, so here I enter manually the characteristics of the people studied:

1)Tmao:tma ratio - 2) Common body odour - 3) Common oral odours
0.13 -None -Pungent,sulfurous
0.37 -None -Sulfurous/fecal
0.47 -None -Fecal,pungent
0.54 -None -Mild sulfurous
0.58 -None -Mild metallic, smoky
0.61 -None -Mild
0.79 -None -Sulfurous
0.79 -None -Strong sulfurous
0.86 -Musty -Unremarkable
0.87 -None -Unremarkable

I speculate that the differences of the odours are likely attributable to the fact that other flavin-oxidising genes were affected, which meant both TMA and other compounds couldn’t be oxidised; so those other compounds likely affected the odours not typically associated with TMAU. Thus, it is a more broad and diverse metabolic issue of dysfunctional flavinoxidising genes. Have you done or considered doing genetic testing?

By the way, have you read about the new drug that is patented for the cardiovascular disease but works for TMAU as well? It is not launched yet, but probably will in future. It works by preventing the formation of TMA, so there’s hope for you!

Drug:
https://pubmed.ncbi.nlm.nih.gov/24247281/

https://www.google.ru/amp/s/newsroom.cl ... robes/amp/

https://pubmed.ncbi.nlm.nih.gov/32330092/

————
New genes found to cause TMAU:
https://bmcmedgenet.biomedcentral.com/a ... 017-0369-8

Ive been fairly positive about my situation in late 2017 to 2018 because of the neg tmau results and just the fact i was able to a guy and he never reacted as if i smelled we were pretty close/intimate. So i thought things were fine. But now in a workspaccw where i see ppl regularly im starting to see every little thing as a reaction, even when i talk ans no one scratches their nose or whatever. The higher my anxiety the worse bb gets.