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TMAU
TMAU
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He went ballistic, like always when I dared to talk with him about bad breath.
I am wondering am I the only one who have such abusive parents and also have bad breath. I have not read about others having such major problems with parents.
Like I have the feeling that your parents still like you though you have bad breath.
I think I will never speak with my father again. He was a real prick just looking me thru the bad breath point of view. Once I rememer he entered my room when I was crying and he screamed stop crying - do you want me to pour water on your head.
And how can a parent call his child a pig .............
I am happy for you others that you do not have to have such abusive parents.
Sorry to hear about what a jerk your father was, that sucks. My dad left my siblings and i when i was thirteen years old. i am in my early thirties now man i carried alot of hate for many years for that man. i have finally let it go, it was hard though. i haven't seen him in ten years and suspect he may be dead(he had a bad drinking problem). thankfully i have my mom for support. i know that you do not have that luxury, but you may not realize that you do have talent. your website is exceptional and has a worthy cause. i think if you can somehow you need to distance yourself from those negative influences like your parents. i can see how getting burned will cause you to stay away from fire and i am sorry you will not get tested. i was just trying to put one more piece to this puzzle together. thanks
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I've been doing some reading as well and shit breath definitly looks to be a symptom of TMAU. And while there isn't a cure yet, it looks like people have had success in controlling it.
Jimi, you are saying that people have bad reactions when you are near them. Maybe it is a possibility that it is not just your breath? Maybe it is a general smell? I personally don't think the smell is limited to my breath. Hope that doesn't make anyone even more paranoid.
But if i had access to get tested for it i would. I'm in australia and i haven't been able to find anything online yet. At least if the result came back negative you could cross it off the list of possibilities. If it came back positive, you would know what you are fighting, and would be able to explore ways to fix it. So i say if you have access to the test do it.
What would be better, spending a couple of hundred on a test, or living like a hermit scared to talk to anyone and spending thousands on dodgy treatments that only concentrate on the mouth.
I wish i had that choice.
TMAU testing
I found a place in the US that does the TMAU testing for a reasonable price. It's $250 for the urine test and $150 for the blood test. I imagine there are other costs such as the lab costs for drawing the blood and taking the urine. They would also have to ship it, with maybe dry ice, and I'm sure we would have to pay for that. But my feeling would be the cost total would be no more than $600.
I don't have the money yet to do it, but I will be putting it aside so that maybe I can get tested this year.
I was talking to a couple other people who have bad breath, mostly fecal odor, that were tested postive for the secondary type of TMAU.
And interestingly, one of them posted the results at work so that people could see them and then they could spread it around to other people who might have wondered why this person smelled so bad.
I think I could live with the diagnosis because it would be a place to start. I agree with Vonreally that if they find that TMAU isn't as rare as once thought, then maybe a grant could be gotten for more research.
I think most of us with the fecal odor that have had absolutely no success with anything we've tried, would be smart to have this checked. The brick wall we feel we are up against may really be there, so let's not ignore it.
Jimi, I'm sorry that you have no support from your parents, and that they have made your situation worse by trying to block you getting help. My parents are not supporting me in this either. My mother, god rest her soul, literally laughed in my face when I told her I was going to Dr. Katz for bad breath. She told me I didn't have bad breath and it was all in my mind. Interesting though, she had bad breath too. She may well have not been able to smell mine and thought it was hers. She knew she had it.
However, you must have some good friends who you can trust? If not, maybe you should consider meeting up with some of the people on your site and getting some feedback from them.
I do consider the TMAU a good possibility as the cause of my condition. And if I find out that is the case I will make the most of it. Yes, I'll try to eat right, maybe take the antibiotics, I don't really like antibiotics, or find some other avenues to test.
But socially, I will make the most of it. Right now I can't talk about my bb issue because people will automatically assume I dont have proper dental hygeine. People associate bb with lack of dental hygeine. Or they will try to help and ask me about all the things I tried. That is uncomfortable. But if I tell them I have a disorder with a name, then what can they say really?
I think I can get by with a diagnosis and use it to my benefit. I would like to be honest with people but I can't without a diagnosis. It's the key to communicating the problem to other people. What do I say now? Gee, I stink, sorry, I don't know what it is, it's something. That never works. People always want to question me more and they look at my teeth carefully while they're doing it.
So, in conclusion, I think it's something that should be explored and I don't see it as a dead end. A diagnosis yes, a dead end no.
Jimi, I hope that you begin to think about this and consider that it's a possiblity. Whether or not you like doctors doesn't matter, what matters is that we get to the truth of the situation. LJ
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But I do not have body odour, only sometimes. And I do not have a fishy smell.
TMAU is genetic disorder and both partners have to have it in mild way. 5 of every 10000 people are having TMAU. Statistic is saying that so I am not sure if that is true.
I only smelled a boy 15 years ago that smelled like fish. That is the only time I remember.
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the site is
http://health.groups.yahoo.com/group/Trimethylaminuria/
you will need to sign up and give a reason as to why you want to join the group.
TMAU
here's the link to the TMAU testing. http://www.hbri.org/TMAuria.htm
I just want to say that much of the info about TMAU is about the genetic disorder, which is associated more with the fishy odor. The secondary TMAU, doesn't have the same notoriety with fish, it's more likely to be fecal or just bad.
And I tried fooling with the diet part of it a while ago, but found that it didn't help. I gave it about a month. The problem is that not everyone responds to the diet. Nor the antibiotic, Flagyl, which is the drug of choice for the problem.
You are on a vegetarian diet, but you should check to see how much choline is in the things you eat. I'm sure you eat beans for protein, and they are high in choline. Bananas and apples are out. And wheat grains are out. You can find the list of foods for TMAU and check to see what you eat right now that is high in choline.
I think we will find that there are going to be people with this problem and it's pattern may have to do with the fecal odor. Others with bad breath that don't have that odor may need to find out what there odor is before undertaking the tests.
I've spent a lot of time on these bad breath boards and I think there will be people who come up positive for TMAU, but there will be others that have something different. There seem to be some patterns to this. LJ
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