I’ve been watching these posts for some time, but finally decided to post my story. It is complicated but hopefully someone can help or advise. It all started around 10yrs ago in my early 20’s, I live in the UK but was living in India for 6 months. I had my wisdom teeth extracted and was given antibiotics, I remember above my eyes and forehead swelling due to allergic reaction to the meds.
After a few weeks I started feeling thirsty more than usual, soon after tinnitus developed in both ears and then floaters appeared in my left eye. Then my mouth started to feel very dry and that’s when the bad breath started. It seems to have got worse over the years. I get a yellow coating on the rear of my tongue, even though I tongue scrape (white phlegm) and I clear my throat often. If I gargle with grapefruit seed extract I pull up a lot of transparent mucus from my throat. My lips also are very dry sting, and have light white patches on the upper lip, have to put cocoa butter to help. I had tonsilloliths too, but these have stopped since quitting dairy.
Doctors in the UK haven’t been able to help. I’ve had an endoscopy (H Pylori negative), Diabetes test, water deprivation test (results Ok), PPI meds,Paranasal sinus scan was clear, basic skin prick test (10 allergens) showed positive for tree mix allergy but docs weren’t concerned. Tried Proton pump Inhibitor, Nasal spray to reduce mucus (No difference). Prescribed Diflucan 50mg for 2 weeks, felt slight reduction on tongue coating and very tired. RAST blood test against a food panel was clear.
The best breakthrough I had was my own course of action as I believe the issue may be fungal/yeast, I went on the candida diet for 2 weeks (with very little fats) using GSE, coconut oil, Apple Cider Vinegar. It was hell, I was shaking and my legs felt so weak. However after week 2 my tongue coating disappeared and thirst was gone, tinnitus even seemed less/different, dark circles reduced.
The following day I was flying to India eating Gluten free meal, I was given a bread roll which was labelled gluten free (must have contained yeast), shortly after eating a few bites my stomach cramped up. It felt like a bomb going off in my stomach, needed the toilet straight away but could not go. It took 2.5 days before passing bowel movement. I wasn’t able to continue the diet and symptoms soon returned.
Went to a nutritionist, sent a stool sample to an independent lab in America and was positive for a parasite (Blastocyctis Hominis) ,and lowish levels of good bacteria. Tried taking lots of oil of oregano, GSE and other immune support but still no change. Also tried probitoics VSL 3 but no difference. My doctors/gastro completely ignored me when I told them about the parasite results. Here are two pictures, one showing the tongue coating and the other showing white patch on the upper lip.
Thanks
Tongue -
Lips -
