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Has anyone tried to contact Undiagnosed Diseases Network?
Has anyone tried to contact Undiagnosed Diseases Network?
"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."
"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."
https://undiagnosed.hms.harvard.edu/
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Did you contact them? What did they say?
Shall we also try to ask Doug Lindsay? Even if he is focusing on his own rare disease, he might be able to give us contacts to doctors who might help us.
https://edition-m.cnn.com/2019/07/27/he ... index.html
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Re: Has anyone tried to contact Undiagnosed Diseases Network?
winter wrote: ↑Fri Jul 13, 2018 5:06 pm If not, can we try to get their help?
"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."
"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."
https://undiagnosed.hms.harvard.edu/