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Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Fri Jul 13, 2018 5:06 pm
by winter
If not, can we try to get their help?
"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."
"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."
https://undiagnosed.hms.harvard.edu/
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Mon Jul 16, 2018 7:39 am
by Batman30
I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Tue Jul 17, 2018 6:11 pm
by winter
Let me know if they get back to you.
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Tue Sep 18, 2018 7:15 pm
by winter
Batman30 wrote: ↑Mon Jul 16, 2018 7:39 am
I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..
Any update?
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Sat Sep 22, 2018 10:21 pm
by Sue2018
winter wrote: ↑Tue Sep 18, 2018 7:15 pm
Batman30 wrote: ↑Mon Jul 16, 2018 7:39 am
I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..
Any update?
Following !!
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Wed Aug 07, 2019 12:11 pm
by winter
Batman30 wrote: ↑Mon Jul 16, 2018 7:39 am
I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..
Did you contact them? What did they say?
Shall we also try to ask Doug Lindsay? Even if he is focusing on his own rare disease, he might be able to give us contacts to doctors who might help us.
https://edition-m.cnn.com/2019/07/27/he ... index.html
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Thu Jun 11, 2020 5:25 pm
by winter
No one tried to contact UDN?
Re: Has anyone tried to contact Undiagnosed Diseases Network?
Posted: Fri Apr 30, 2021 8:46 am
by simple
Hi Winter, I don’t think chronic bb qualifies for undiagnosed disease symptom, as many already diagnosed diseases cause it.
winter wrote: ↑Fri Jul 13, 2018 5:06 pm
If not, can we try to get their help?
"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."
"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."
https://undiagnosed.hms.harvard.edu/