Has anyone tried to contact Undiagnosed Diseases Network?

[winter]

If not, can we try to get their help?

"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."

"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."

https://undiagnosed.hms.harvard.edu/

[Batman30]

I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

[winter]

Let me know if they get back to you.

[winter]

I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

Any update?

[Sue2018]

I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

Any update?

Following !!

[winter]

I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

Did you contact them? What did they say?

Shall we also try to ask Doug Lindsay? Even if he is focusing on his own rare disease, he might be able to give us contacts to doctors who might help us.
https://edition-m.cnn.com/2019/07/27/he ... index.html

[winter]

No one tried to contact UDN?

[simple]

Hi Winter, I don’t think chronic bb qualifies for undiagnosed disease symptom, as many already diagnosed diseases cause it.

If not, can we try to get their help?

"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."

"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."

https://undiagnosed.hms.harvard.edu/