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- by malory
- Sun Feb 15, 2015 12:03 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: TMAU diagnosis
- Replies: 2
- Views: 1056
- Gender:
So so sorry to hear this missjj. There are some people with tmau who manage to alleviate their symptoms a bit in various ways, but it's not easy. I haven't managed it myself but there are stories of hope from other people who are able to manage their odour with a specific diet and/or supplements. I'...
- by malory
- Thu Sep 11, 2014 10:44 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK TV PROGRAMME LOOKS FOR INTERVIEWEE WITH TMAU
- Replies: 0
- Views: 627
- Gender:
UK TV programme 'This Morning' is looking for a case study of someone who has been diagnosed withtrimethylaminuria and can talk on live TV about how it affects their life.We arrange all travel and can pay a fee. It will be for a Tuesday show overthe next few weeks. It would be brilliant if you could...
- by malory
- Sun Aug 03, 2014 8:56 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Supplements for TMAU/malodour-suffering people in Africa
- Replies: 0
- Views: 662
- Gender:
http://www.bloodbornebodyodorandhalitosis.com/search/label/MEBO%20Supplements%20for%20Africa%20Drive Maria of MEBO has set up a system which enables sufferers in some African countries to access supplements which may help them to control their odours. Any small donation to this project via Paypal wo...
- by malory
- Sun Aug 03, 2014 8:50 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Black Swan Crowdfunding research initiative
- Replies: 0
- Views: 709
- Gender:
At least 15 malodour sufferers are required to sign up with an e-mail address to establish the amazing Black Swan research initiative. NO donations are necessary to get this project up and running - just one minute to sign up. Details are written on the MEBO site: 'The RE(ACT) effort can be supporte...
- by malory
- Fri Jul 04, 2014 8:52 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: A stinky singer...
- Replies: 2
- Views: 1073
- Gender:
FMO3 enzyme tablets are not currently prescribed to TMAU sufferers, though there are rumours that such a remedy exists at an exorbitant price. I wish it could be as simple as taking an FMO3 pill. As a TMAU sufferer whose main odour source is BREATH, I would take it to see if it could help. Current t...
- by malory
- Tue Apr 22, 2014 7:34 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: LONDON MEET UP 17TH MAY 2014
- Replies: 2
- Views: 1023
- Gender:
Hi all A non-judgemental meet up where everybody is welcome. You can talk about whatever you like (odour or non-odour related); you can cry if you want; you can laugh, sing and dance if you want; you can discuss raising awareness, or you can just get drunk - whatever you like. And, if the weather is...
- by malory
- Thu Apr 10, 2014 5:23 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Ellie's raising awareness
- Replies: 3
- Views: 1331
- Gender:
You're absolutely right! But the media are the media, and they say what they want. They insist on the 'rarity' of odour conditions because that's what they want to believe, I suppose. Poor Ellie insists on telling them it's a misnomer to refer to TMAU as fish odour syndrome but they still ignore thi...
- by malory
- Sun Apr 06, 2014 5:58 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Ellie's raising awareness
- Replies: 3
- Views: 1331
- Gender:
http://www.mirror.co.uk/news/weird-news/ive-suffered-14-years-smelling-3380410 Hi all Ellie has not only done the above article for The Mirror (UK national paper) but she is also on BBC Radio 5 live tomorrow (Monday 7th April 2014 UK) at 8.40. Tune in if you can! Great job, Ellie. Brilliant work on ...
- by malory
- Fri Apr 04, 2014 8:25 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Lisa's Petition to Obama
- Replies: 0
- Views: 883
- Gender:
I would just like to encourage everyone to support Lisa's petition. http://lisamariemd.wix.com/borc#%21campaigns/c1ba5 The link to sign it is below. I think it is relevant to anyone who suffers from malodour - the source of the malodour is irrelevant because our suffering is the same, so let's get t...
- by malory
- Thu Dec 12, 2013 11:24 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK Research for TMAU coming soon ...
- Replies: 8
- Views: 3149
- Gender:
It would be a good gesture if people from our community e-mailed the MRC to express our thanks for the TMA research grant. This would still be a raising awareness campaign and an excellent follow-up to the original campaign requesting the grant. Contact e-mails are: linda.willmott@headoffice.mrc.ac....
- by malory
- Thu Dec 12, 2013 11:21 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Raise awareness amongst British MPs on 29th November 2013
- Replies: 5
- Views: 2518
- Gender:
Thanks to everyone who took part in e-mailing the UK Health MPs. The reply I received is below: Thank you for your correspondence of 28 November about Trimethylaminuria (TMAU). I have been asked to reply. I appreciate your concerns about the strategies in place for dealing with rare diseases such as...
- by malory
- Thu Dec 12, 2013 11:19 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: I'm taking action-your help is welcome.
- Replies: 9
- Views: 2733
- Gender:
Thanks to everyone who took part in e-mailing the UK Health MPs. The reply I received is below: Thank you for your correspondence of 28 November about Trimethylaminuria (TMAU). I have been asked to reply. I appreciate your concerns about the strategies in place for dealing with rare diseases such as...
- by malory
- Thu Nov 28, 2013 9:00 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: I'm taking action-your help is welcome.
- Replies: 9
- Views: 2733
- Gender:
Mac, I really hope other people follow your lead and e-mail the MPs. Raising awareness is crucial. This is the link for the brief form you will need to complete: http://www.info.doh.gov.uk/contactus.nsf/memo?openform E-mail addresses for the secretary of health (Mr Jeremy Hunt) and the shadow secret...
- by malory
- Thu Nov 28, 2013 10:11 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Raise awareness amongst British MPs on 29th November 2013
- Replies: 5
- Views: 2518
- Gender:
Hi For those of you willing to send a message to Jeremy Hunt MP to raise awareness of metabolic malodour disorders, perhaps focusing on the potential discrimination against sufferers within the workplace/education system, and requesting clearer disability legislation, this is the link for the brief ...