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- by malory
- Sun Nov 24, 2013 3:58 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Raise awareness amongst British MPs on 29th November 2013
- Replies: 5
- Views: 2519
- Gender:
Thanks for replying. Things do change if we push for it. 2 years ago we campaigned the Medical Research Council for a research grant into the only officially recognised malodour condition to date (TMAU). Today, we have that grant. http://gtr.rcuk.ac.uk/project/772B5BB8-C185-455B-9AE2-C4BC7F8369DF Po...
- by malory
- Sun Nov 24, 2013 3:50 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: im so mad at my family
- Replies: 13
- Views: 3092
- Gender:
I have to deal with this situation at home with my partner (and others). It creates so many arguments, but there is no way to convince somebody who lives in denial of your problem that denying its existence will make it go away. At first, I would say that people who deny the terrible effects of livi...
- by malory
- Fri Nov 01, 2013 9:38 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK Young People needed for BBC3 documentary
- Replies: 0
- Views: 744
- Gender:
BBC3 are looking to make a documentary about young sufferers of uncommon disorders. this message is from: Stephen Nutt Executive Officer raredisease.org.uk "Sundog Pictures are looking to speak to young people aged 16-25 about how they cope with illness for a possible BBC Three documentary. So ...
- by malory
- Thu Oct 31, 2013 1:58 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: Raise awareness amongst British MPs on 29th November 2013
- Replies: 5
- Views: 2519
- Gender:
Don't be put off if the MPs did not respond to us last time; things are changing. Organisations (Medical Research Council etc) are starting to take notice of our voices. Please take part in a mass e-mail and letter-sending campaign targeting British MPs. We want MPs to recognise the disabling nature...
- by malory
- Tue Oct 15, 2013 3:05 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: I'm taking action-your help is welcome.
- Replies: 9
- Views: 2737
- Gender:
Great idea, Mac. Two years ago, I encouraged people to write and e-mail to their MPs on 4th July. I don't know how many people participated in the effort, but it is always good to keep trying. I am in total support of any raising awareness effort like this and will happily contribute to it. Here is ...
- by malory
- Mon Jul 29, 2013 6:44 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: List of sympathetic drs/practitioners - can you add a name?
- Replies: 1
- Views: 947
- Gender:
Maria, president of the odour sufferer's charity MEBO.org, is trying to compile an international list of medical practitioners/doctors/dentists who have shown a keen interest in helping their patients investigate TMAU and odour disorders. This is a brilliant idea because some of us have been lucky e...
- by malory
- Wed Jul 24, 2013 2:21 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK Research for TMAU coming soon ...
- Replies: 8
- Views: 3151
- Gender:
The funding is real, but wrapped up in bureaucracy which prevents it from being accessible yet on the link above. Nobody needs to donate if they aren't comfortable with it or can't afford it. I already have donated and hope to donate more. That's my choice. Most importantly, the decision to give odo...
- by malory
- Sun Jul 21, 2013 7:24 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK Research for TMAU coming soon ...
- Replies: 8
- Views: 3151
- Gender:
Absolutely, Mac. As soon as the grant becomes official, we will do another e-mail campaign of thanks/raising awareness to the MRC and the like. There have been some queries regarding the fundraising to boost the MRC grant. I have spoken with the scientists involved in the research project and they w...
- by malory
- Fri Jun 28, 2013 10:10 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK Research for TMAU coming soon ...
- Replies: 8
- Views: 3151
- Gender:
Very soon, the research funded by the UK's Medical Research Council will get underway. We have an amazing team of scientists working on our behalf. They will be led by Dr Liz Shephard of University College London, who, as you probably know, has selflessly supported our community for many years. Now ...
- by malory
- Fri Jun 21, 2013 11:14 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: UK Research for TMAU coming soon ...
- Replies: 8
- Views: 3151
- Gender:
Some hopeful research The UK's Medical Research Council have agreed to fund some research which will hopefully culminate in the development of an effective therapeutic for TMAU. This news is of significance to ALL members of the malodour community because: a) it shows that the UK medical establishme...
- by malory
- Thu May 16, 2013 4:22 pm
- Forum: GENERAL ABOUT BAD BREATH
- Topic: 2 years and i'm almost back to normal-everyone PLEASE read!!
- Replies: 27
- Views: 7974
- Gender:
Thank you kellysmith90 for taking the time to share your success with us. This is a very interesting video which advocates eating raw foods, spirulina etc. and talks about the importance of vitamin C. Well done to you for finding a solution to your problem. I'm always amazed when people who try to h...
- by malory
- Sun Apr 07, 2013 10:09 am
- Forum: GENERAL ABOUT BAD BREATH
- Topic: child denied education because of odour
- Replies: 8
- Views: 2243
- Gender:
Well yes, you're right about the media, of course. We do not know which steps the school took prior to this happening. But I think sending the child home 24 times in this way was definitely not the right thing to do. I think the parents got upset because they felt the school did not discuss the issu...