Your Email Address:

First Name:




Search found 235 matches

by malory
Sun Nov 24, 2013 3:58 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: Raise awareness amongst British MPs on 29th November 2013
Replies: 5
Views: 2519
Gender:

Thanks for replying. Things do change if we push for it. 2 years ago we campaigned the Medical Research Council for a research grant into the only officially recognised malodour condition to date (TMAU). Today, we have that grant. http://gtr.rcuk.ac.uk/project/772B5BB8-C185-455B-9AE2-C4BC7F8369DF Po...
by malory
Sun Nov 24, 2013 3:50 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: im so mad at my family
Replies: 13
Views: 3092
Gender:

I have to deal with this situation at home with my partner (and others). It creates so many arguments, but there is no way to convince somebody who lives in denial of your problem that denying its existence will make it go away. At first, I would say that people who deny the terrible effects of livi...
by malory
Fri Nov 01, 2013 9:38 am
Forum: GENERAL ABOUT BAD BREATH
Topic: UK Young People needed for BBC3 documentary
Replies: 0
Views: 744
Gender:

UK Young People needed for BBC3 documentary

BBC3 are looking to make a documentary about young sufferers of uncommon disorders. this message is from: Stephen Nutt Executive Officer raredisease.org.uk "Sundog Pictures are looking to speak to young people aged 16-25 about how they cope with illness for a possible BBC Three documentary. So ...
by malory
Thu Oct 31, 2013 1:58 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: Raise awareness amongst British MPs on 29th November 2013
Replies: 5
Views: 2519
Gender:

Raise awareness amongst British MPs on 29th November 2013

Don't be put off if the MPs did not respond to us last time; things are changing. Organisations (Medical Research Council etc) are starting to take notice of our voices. Please take part in a mass e-mail and letter-sending campaign targeting British MPs. We want MPs to recognise the disabling nature...
by malory
Tue Oct 15, 2013 3:05 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: I'm taking action-your help is welcome.
Replies: 9
Views: 2737
Gender:

Great idea, Mac. Two years ago, I encouraged people to write and e-mail to their MPs on 4th July. I don't know how many people participated in the effort, but it is always good to keep trying. I am in total support of any raising awareness effort like this and will happily contribute to it. Here is ...
by malory
Tue Oct 15, 2013 2:52 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: A fellow sufferer's success story
Replies: 24
Views: 29297
Gender:

I'm sorry. this sufferer is a sufferer no longer so I haven't heard any more from him. I assume he got rid of the bacteria and managed to right himself.
by malory
Sun Sep 01, 2013 6:20 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: An inspiring odour sufferer
Replies: 0
Views: 769
Gender:

An inspiring odour sufferer

http://m.youtube.com/#/user/loulou5665

I really enjoyed watching this young woman talking about living with her odour.
by malory
Mon Jul 29, 2013 6:44 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: List of sympathetic drs/practitioners - can you add a name?
Replies: 1
Views: 947
Gender:

List of sympathetic drs/practitioners - can you add a name?

Maria, president of the odour sufferer's charity MEBO.org, is trying to compile an international list of medical practitioners/doctors/dentists who have shown a keen interest in helping their patients investigate TMAU and odour disorders. This is a brilliant idea because some of us have been lucky e...
by malory
Wed Jul 24, 2013 2:21 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: UK Research for TMAU coming soon ...
Replies: 8
Views: 3151
Gender:

The funding is real, but wrapped up in bureaucracy which prevents it from being accessible yet on the link above. Nobody needs to donate if they aren't comfortable with it or can't afford it. I already have donated and hope to donate more. That's my choice. Most importantly, the decision to give odo...
by malory
Sun Jul 21, 2013 7:24 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: UK Research for TMAU coming soon ...
Replies: 8
Views: 3151
Gender:

Absolutely, Mac. As soon as the grant becomes official, we will do another e-mail campaign of thanks/raising awareness to the MRC and the like. There have been some queries regarding the fundraising to boost the MRC grant. I have spoken with the scientists involved in the research project and they w...
by malory
Fri Jun 28, 2013 10:10 am
Forum: GENERAL ABOUT BAD BREATH
Topic: UK Research for TMAU coming soon ...
Replies: 8
Views: 3151
Gender:

Very soon, the research funded by the UK's Medical Research Council will get underway. We have an amazing team of scientists working on our behalf. They will be led by Dr Liz Shephard of University College London, who, as you probably know, has selflessly supported our community for many years. Now ...
by malory
Fri Jun 21, 2013 11:14 am
Forum: GENERAL ABOUT BAD BREATH
Topic: UK Research for TMAU coming soon ...
Replies: 8
Views: 3151
Gender:

UK Research for TMAU coming soon ...

Some hopeful research The UK's Medical Research Council have agreed to fund some research which will hopefully culminate in the development of an effective therapeutic for TMAU. This news is of significance to ALL members of the malodour community because: a) it shows that the UK medical establishme...
by malory
Mon May 27, 2013 9:43 am
Forum: GENERAL ABOUT BAD BREATH
Topic: Moving to Italy
Replies: 1
Views: 873
Gender:

Have you joined the Italian odour forum:

www.bodyodor.forumcommunity.it

There are a range of odour sufferers on this forum and maybe some of them will be living near you so you could arrange a meeting or something.
by malory
Thu May 16, 2013 4:22 pm
Forum: GENERAL ABOUT BAD BREATH
Topic: 2 years and i'm almost back to normal-everyone PLEASE read!!
Replies: 27
Views: 7974
Gender:

Thank you kellysmith90 for taking the time to share your success with us. This is a very interesting video which advocates eating raw foods, spirulina etc. and talks about the importance of vitamin C. Well done to you for finding a solution to your problem. I'm always amazed when people who try to h...
by malory
Sun Apr 07, 2013 10:09 am
Forum: GENERAL ABOUT BAD BREATH
Topic: child denied education because of odour
Replies: 8
Views: 2243
Gender:

Well yes, you're right about the media, of course. We do not know which steps the school took prior to this happening. But I think sending the child home 24 times in this way was definitely not the right thing to do. I think the parents got upset because they felt the school did not discuss the issu...