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Nasal odor My story
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I never wanted to think that the reason for the odours r stomach problems cuz of how much longer it'll be to treat it. But the info ure saying does make sense and matches with other stuff I've been reading about. The rotten egg smell is very strong in my case, I'm on one end of the carriage and people on the other end can smell people cough look at me etc..
How much was the test?
Thanks so much for the information!
One thing to note is that the gases released i.e. hydrogen and methane are odorless therefore my point is that the bacteria which are producing the odors are sulphate reducing bacterias. But it proves that you have a dysbiosis which is causing real problems to both the intestinal environment and therefore damages the ability for the production of enzymes needed to breakdown various molecules. These are then an issue. There is then also the fact that the the change in environment makes it difficult for the crucial good bacteria and good yeasts to grow (these are crucial for intestinal health and digestion of food. This is now a recipe for putrification fermentation andtoxic byproducts, all of which needs to be processed by an increasingly overburdened liver.
One crucial thing is that the sulphate reducing bacteria can use up the hydrogen and methane produced by the other pathogenic overgrowing bacteira for its energy, therefore this typifies the symbiotic relationship between these pathogenic bacteria which have gotten out of control in our intestines.
I recently discovered that there is in fact a test which has been developed by a lab in belgium. This was geared towards individuals who are diagnosed or believe they have Chronic Fatigue Syndrome...I am only mentioning this because that is what some have hypothesised is a key cause of CFS.(i don't know about posting link here but if you PM me I will send you so you can read it). In my case I just want to see if I do have the sulfate reducing bacteria so I intend to order one of these tests to establish this. If this is correct then it would surely warrant some research investigation by academics.
I have looked at the SIBO diets and I am not sure they will help because essentially the system has become overrun with pathogenic bacterias and yeasts. The diets are notoriously difficult to follow not just because of cravings but because of the inconvenience of having to eliminate virtually everything which is already made.
The other point is that leaky gut is something which develops as a result and is part of the viscious circle. The l-glutamine and colostrum assists this but the analogy that is often used is that of a lawn full of bad weeds (bad bacteria) crowding out the grass... you need to eradicate the weeds before sowing the grass seed and propigating it. So we need to eradicate the sulfate reducing bacteria.
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Thank for all this info
My theory is that if you have these bacterias, the chances are that you have sulfate reducing ones too because these sulfate reducing bacterias will use some of the hydrogen gas produced by the other bacterias and transform it into hydrogen sulfe HS2.... this is my 'pet theory' but by accident I stumbled upon a separate urine test which can determine if sulphate reducing bacteria are in gut; but my understanding is that this urine test is not recognised by mainstream medicine at the moment.
Irrespective of my pet theory, the SIBO test is recognised and will prove if you have issues with a dysbiosis. My suggestion would be to seek referral to gastroenterologist if your test comes back positive. As mentioned, NHS do not offer the Lactulose (they only offer glucose and lactose- the problem with these is that these sugars often don't make it to the distal part of the small intestine, whereas lactulose is not digested by human gut and so it will pass down and bacteria will digest it and give off gas if they are there).
As regards treating, I am not a medic and so I can not offer any advice or suggestions. There are naturopath/herbal supplements approaches which are often recommended in conjunction with a complete change of diet and eating habits. I have tried some but without success. Some combinations of antibiotics are usually suggested but some with little knowledge just shell out one type of antibiotic which will have little effect or short term effect. As I said this is for gastro consultant to attend to, but most have no idea about gut ecology because they are all interested in colitis, crohns, GERD, pancreas and other issues (whilst if they actually started from the premis that the gut ecology is the most important factor from which all else follows (including the above conditions) they would find that there would be more success than throwing pills/medications around like confetti which attempt to deal with symptoms and make pharmaceutical shareholders very rich but fail to address the patient's underlying cause(s) )
The L-Glutamine and colostrum are beneficial to the gut lining and assist in healing the tissues, but this will be of little use until the pathogenic bacterias and yeasts are brought under control and the good bacteria re-establish their populations in the gut.
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In my opinion (which is merely as someone who has read naturopath websites/musings and some jouranl resources online) the L-Glutamine and Colostrum will be beneficial in restoring the integrity of the gut (the holes and inflamation of the intestinal linining and so will take a bit of the burden off the liver and immune system which occurs as a result of molecules passing through without being digested/broken down by relevant enzymes....it may also assist the brush border get back on its feet....but this is not going to be a cure...the underlying dysbiosis needs addressing and that means restoring the balance between the good bacteria species).
There is lots of information on the internet regarding dysbiosis, SIBO and leaky gut. These are all connected and the many of the inflamatory auto immune ailments which occur are a result.
A good thing to do is cut out all refined carbs and dairy (but it is so difficult I managed 6 weeks and my mind and thought processess sharpened like never before and energy levels were at all time high...but it is so easy to fall back.... and I still think odor was present albeit reduced...I think this was due to fact that even some healthy good natural can be utilised by the pathogenic bacteria.....again point here is the need to eradicate/significantly reduce those bacteria species and propigate the good bacterias.
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Have you been to a naturopath place ? If yes what did they suggest?
The user that was here before(itsreal) said it was helping them the glutamine and colostrum but from what ure saying it is not reducing the pathogenic bacteria. Can like the use of an antibiotic and strong probiotics do anything. Sorry I'm asking so many questions. I just want know more about this
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If you want to talk or have a question for me, feel free to reach out.
Here are the links that pointed me in the direction of my cure. But the decision to have the 2nd surgery was mine alone and done on faith because I had a sense that the smell, white tongue, and PND were coming from the adenoid region.
http://www.ncbi.nlm.nih.gov/pubmed/17372553
viewtopic.php?t=2770
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I was reading a post on here called 'a fellows sufferer's success story' and it's given me hope again that maybe sulphite reducing bacteria in my colon is producing the bad smell.
I too have done a sibo breath test with biolab (£120. It was so embarrassing I really smelled out the place and there were no windows. They kept the toilet door open (because there was a window in there l) just to ventilate.
I want to post my results. And maybe compare with yours. My doctor really doesn't know what he's doing and I'm left to figure it out all on my own. I was given antibiotics for 2 weeks and they didn't help the smell at all. And I was very gassy too. My test peaked at 70ppm hydrogen I googled my curve shape of results and different curves mean different things. And I came up with ileal overgrowth but not sure.
Ive just ordered the comprehensive stool test with para-something. As the dude who was cured in the post I mentioned in the beginning had his stool test done by a lab called doctors data in the USA. This is same place biolab send our shit in the post to.
Once we have our sibo results and the stool results we've got enough ammo to go too the doctor and ask for a proper referral to a gut specialist who won't show you out of his office or ask if you've ever had mental issues when you complain of bad breath.
Are you referring to the Comprehensive stool Analysis with parasitology x3 ?poodude80 wrote:I'm with you on this english15 I honestly think it's my colon cos I get a huge amount of gas all day and night. I'm bloated too all the time no matter what I eat. And if it smells of sewage/shit /rotten it's probably a colon bacteria fermenting it right
I was reading a post on here called 'a fellows sufferer's success story' and it's given me hope again that maybe sulphite reducing bacteria in my colon is producing the bad smell.
I too have done a sibo breath test with biolab (£120. It was so embarrassing I really smelled out the place and there were no windows. They kept the toilet door open (because there was a window in there l) just to ventilate.
I want to post my results. And maybe compare with yours. My doctor really doesn't know what he's doing and I'm left to figure it out all on my own. I was given antibiotics for 2 weeks and they didn't help the smell at all. And I was very gassy too. My test peaked at 70ppm hydrogen I googled my curve shape of results and different curves mean different things. And I came up with ileal overgrowth but not sure.
Ive just ordered the comprehensive stool test with para-something. As the dude who was cured in the post I mentioned in the beginning had his stool test done by a lab called doctors data in the USA. This is same place biolab send our shit in the post to.
Once we have our sibo results and the stool results we've got enough ammo to go too the doctor and ask for a proper referral to a gut specialist who won't show you out of his office or ask if you've ever had mental issues when you complain of bad breath.
https://www.doctorsdata.com/microbiology/
Nothing have ever helped even slightly except for colonics but that could have been a placebo effect and only lasted a day.
Mouth
Dentist says great teeth. I brush floss and take oral probiotics which I buy from Amazon. Smell still there.
Throat
Went to ent who advised to take out tonsils.
I have bought a nasal irrigator and also wipe the far back of my tongue with a cloth as far back as it can go. As I do have pnd. As bad as the smell is. When I've cleared it. I still smell of be.
Oesophagus
Had a barium swallow test and endoscopy. However this was to test for achilasia. This didn't show up. But I'm no totally convinced. Because when I swallow it feels like I've got sharp stones stuck in my throat. Maybe I have small cuts where bacteria is festering. However I did this on the NHS so the fact they didn't check this or take samples for testing has left a question mark.
Gut
Started to get bloated and gassy before a few months before bb gradually started to appear and intensify. A mixture of stress and complete junk food diet. And over the top alcohol consumption.
Here's a fun fact. I Woke up one morning smelling really bad my hair and all my body pores. This carried on for weeks. In fact my hair still smells like sulfur if I don't wash it every day with Jasons anti fungal shampoo. It wasn't long after this that the bloating and bb followed.
In terms of supplement I have tried. The list is endless
Probiotics vl3 - and expensive 11 strain custom probiotics.Com cleared all the bacteria in my mouth somehow. Where the lick your wrist test was amazingly fresh even in the morning. However somehow my breath was much much worse. The reactions from people were pure horror. What's worse is I thought I was cured and was unprepared for that. I was crushed.
Gse anti candida. Liver cleanse. Colostrum Chlorophyll. Charcoal oregano
No effect.
At present I am taking vitamin b2. goldenseal. vitamin e. hcl. Sea kelp and Digestive enzymes and l glutamite. I'm not holding my breath!
However I have bought some kumbacha and water kefir which I am brewing hopefully they might help I will keep you guys posted.
Ive been on a Melon and kiwi fruit diet with skin for 3 days now and I've had no gas at all. My breath is still bad though. Also I generally have been trying to keep to a Fodmap diet in the last few months too.