paul80 wrote: ↑Fri Oct 28, 2022 8:07 am
KL123 wrote: ↑Fri Oct 28, 2022 3:17 am
paul80 wrote: ↑Sun Oct 23, 2022 2:42 am
Short answer: high-dose molybdenum supplementation.
Interesting thread as I went through all the posts above.
Thanks for sharing and almost all of your theories and research resonates with my own.
I also got it passed from my dad, and I transferred it to my kids. Two of siblings also go it. And as in your case, my mother had this sweet breath smell. I never ever picked a hint of bad breath on her. She had these beautiful milky white and totally symmetrical teeth, all natural, that I didn't get either; except for the symmetry part. And yeah, an Asian here too.
How do you plan to order monthly blood tests to measure the levels of certain chemicals? Do you know a physician who prescribes it for you?
I tell ya, if God could perfect a curse on some people, this would be it. That's not to diminish the condition of people who are more unfortunate than us (cancer, paralysis, mental issues, etc). But this is just, completely senseless and utterly pointless. We are social creatures and this condition prevents us from living a normal life. If you could come up with the worst combination of absolutely offensive and revolting smells, it would be the breath we have. What are the odds some random malfunction in our genes results in the smell of rotting feces and funky animal barnyards? Why couldn't it go the other way and produce some heavenly scent? Lol.
Anyway, regarding the blood tests, I have a doc who will do this for me. He's a gastroenterologist who I visited many times during the early stages of my personal investigation, and he understands my frustration and determination in managing this condition. Although this is way beyond gastroenterology and more related to the field of functional medicine and genetics, pretty sure he'll go along with prescribing the blood tests. You need to find a doc who's humble, understanding, and sympathetic. A disgruntled, proud, and by-the-book doc who's set in his ways may not go along with it though, because you know, he/she knows best and we need to obey dear doctor.
Yep, I think personally we have become somewhat of a thick skinned, unlucky bastards who are handed over with this crap. I managed to survive with this shit in cooperate America - and I think I also got somewhat lucky to have grown up early years of my life in Asia, where people generally tend to be a bit more considerate, courteous and respectful. They generally don't put you down and pass unpleasant comments and make monkey faces and bit behind your back if you have chronic halitosis. People tend to be a bit more patient and forgiving in some Asian countries. They really don't make such a freaking big deal about it if your breath stinks!
However, the worst of the worse part of this shi't is to having it passed it on to my kids.
School and general social set up in United States is much more blunt, brutal and unforgiving. Everyone is ready to take a sniff and bark at your face.
My little kids went thru hell in School.
Their little and innocent brains were bombarded with insults and humiliations, while they did not know what the heck is wrong with them with no fault of their own? They religiously brushed their teeth, and followed a good oral hygiene.
My elder one who is now a teenager,
He lost all happiness and all joy of life.
He has become a strict introvert. He locks himself in the room all day, after school, does not talk to anybody and is deeply sad all the time. He lost all confidence and his head usually down in shame.
This is a kid who was the joy of our life when he was toddler and a boy. He was super playful and made everyone laugh and smile. But now, his entire life is ruined. I am sure, he must have occasional suicidal thoughts - just like I used to have.
And this is a very tough subject to talk to kids; however, we did have some conversations. We even thought about moving out of the USA where the social set up is so brutal and some people are so nasty and truly assholes.
When I look at the excruciating suffering of kids. I feel a like knife going thru my heart.
I now wish that only and only if I knew I was gonna pass this shit to my kids, I would've NEVER EVER EVER gotten married and have had kids. NEVER!
I even told my son, not to have kids. And I think he knew, why?
I think, as your rightly said, genetic exploration in the medical science is our best hope.
I do have a request to you.
If possible, please sign on once in a while and keep it rolling. Many have come n gone from this forum, but I think if we find something that could help others, we should keep all informed and form a synergy to fight against this evil.