The Petition is on!
Posted: Mon Oct 02, 2006 9:02 pm
Hello everyone;
We seem to have become a motivated group these days, because we have volunteers who are willing to collect data for the petition.
Not only are we collecting data within the english speaking world, we have people working in other countries, collecting names and info, who will join in to create a petition, large enough not to be overlooked.
The starting point: First, we collect basic info for the petition. The petition is not meant as our argument, it states the obvious, there are thousands of us around the world in need of some relief. We are in various regions and can be contacted for research studies or treatment options.
The second part will contain statistics from our questionaires that have been started on this site as well as the Breathhelp4U site. After we complete all the questions that we deem pertinent, then members will give their answers.
Those answers will turn into numbers, statistics, that these various doctors, dentists, pharmaceutical companies, colleges, research institutes, etc that we send this to will have a chance to see what our group looks like. What are vital statistics are.
So, we need to work together on this and combine our efforts.
Jimi-I will post your site address atop our group site so that others will be directed here as well.
Right now, one of our members, Patty, is collecting the info for the petition.
Here's an example of what to send:
LHart, [email protected], Southern California, age of onset 7, current age 43.
So, send your name, you can use a first initial, email address, general location, age of onset, current age.
This will be included in the petition segment of the presentation.
Please send the info to: parc127@aol. com
And if you have questions or ideas, or want to volunteer, please contact me at [email protected]. Laura
We seem to have become a motivated group these days, because we have volunteers who are willing to collect data for the petition.
Not only are we collecting data within the english speaking world, we have people working in other countries, collecting names and info, who will join in to create a petition, large enough not to be overlooked.
The starting point: First, we collect basic info for the petition. The petition is not meant as our argument, it states the obvious, there are thousands of us around the world in need of some relief. We are in various regions and can be contacted for research studies or treatment options.
The second part will contain statistics from our questionaires that have been started on this site as well as the Breathhelp4U site. After we complete all the questions that we deem pertinent, then members will give their answers.
Those answers will turn into numbers, statistics, that these various doctors, dentists, pharmaceutical companies, colleges, research institutes, etc that we send this to will have a chance to see what our group looks like. What are vital statistics are.
So, we need to work together on this and combine our efforts.
Jimi-I will post your site address atop our group site so that others will be directed here as well.
Right now, one of our members, Patty, is collecting the info for the petition.
Here's an example of what to send:
LHart, [email protected], Southern California, age of onset 7, current age 43.
So, send your name, you can use a first initial, email address, general location, age of onset, current age.
This will be included in the petition segment of the presentation.
Please send the info to: parc127@aol. com
And if you have questions or ideas, or want to volunteer, please contact me at [email protected]. Laura