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please read it. lets go public!

Posted: Mon Nov 08, 2010 1:42 am
by joe1
Hello. I would like to propose something serious, something that perhaps many of you disagree or fear to do. what do you think if we bring to light the problem to the society, in a public way i mean. That is to say, forming groups and going to programs of tv and all that? I with pleasure would be the face of a group of Halitosis. I believe in that way we would be able to channel the funds for a deeper research, because the truth is that the laboratories are very slow in the investigations and I do not believe that they are very interested in a solution or cure if we dont help them whether economically or lending us so they do test on us. please let me know what u guys think about this idea, and let me know the cons and pros that u see please. thank u.

Posted: Mon Nov 08, 2010 6:55 am
by hopelessone
it's a timely idea. I'm interested in lending my support. It's time we spoke up.

Posted: Mon Nov 08, 2010 5:37 pm
by Music Lady
I would definitely be willing to speak out.

It'd be nice if we had more statistical info, like the percentages of people affected by this problem. I often wonder what the s*****e statistic is as it relates or other odor disorders even. I'll bet you there are many cases but the details are not made public.

We need to confront the public with info that would get folks to take us seriously.

20/20 did an interesting special a few years back on mysterious illnesses. They had a woman on who suffered from TMAU, but that was it in terms of odors. I often wondered what happened to her and if she was able to get any additional help after that show.

Doctors seem to only acknowledge this halitosis in several categories (Tonsil problems, sinuses/respiratory problems, Hpylori, acid reflux, etc.). And if you don't fall in either of those there done with you-your on your own.

I think it'd be great even to start by putting together a notebook of various details in battling this problem, and possibly using that as our calling card so to speak?? sort of our introduction??

Would love it if other folks could weigh in.

hi

Posted: Thu Nov 11, 2010 2:07 am
by joe1
so.. just 2 people support my idea?? ladys and gentlemen we have to make things happen, they are not going to happen by their own. its time WE make them happen. think about it! leave your comfort zone guys. lets move!