INTERESTING AFFILIATE LINKS
DESTROY DEPRESSION
BAD BREATH FREE FOREVER
TEETH WHITENING 4 YOU
CANDIDA CRUSHER
HEARTBURN & ACID REFLUX REMEDY REPORT
PROFESSIONAL VIDEO MADE ON OUR BEHALF NEEDS VOTES
PROFESSIONAL VIDEO MADE ON OUR BEHALF NEEDS VOTES
VOTE FOR THIS VIDEO NOW!!!
http://ireport.cnn.com/docs/DOC-748848
And thank you so much, Cheryl Fields.
-
- Moderator
- Posts: 3339
- Joined: Wed Oct 29, 2008 1:29 pm
-
- Moderator
- Posts: 3339
- Joined: Wed Oct 29, 2008 1:29 pm
The idea that most people have in their minds about TMAU is the person who stinks a whole house out of rotting fish - primary TMAU - the worst type caused by the most unfortunate type of genetic combination.
But as malory said, TMAU can manifest itself in other less severe ways which are far more common than most people realise. If there was more awareness of this fact, it would help to change attitudes towards odour conditions.
I think if we consider ALL the people with incurable odour conditions(not just tmau) then this is not a rare phenomenon. If we come together to protest, then maybe that message will come across more strongly and people won't be able to fob as off as rarities/aliens.
We live in hope but better to do something than nothing
rare
there may be a much higher percentage of folks with a lesser degree of tmau . this is plausible , but we may hardly notice them from day to day . anybody who comes across us folks with chronic powerful odor knows how rare it is . Far less than 1 in 100 .
whatever helps get the word out ,more awareness and research for chronic odor issues is all good. Go for it , fudge the numbers in the meantime
we can use all the good help we can muster
Vote http://ireport.cnn.com/docs/DOC-748848
skype skunkhugs
It is that anyone with any smell related issue needs others to be aware of what we go through on a daily basis.
The problem is really that people are uneducated, and do not have the natural tools to deal with people like us.
We should not be rejected in society because of issues we can't help.
Any other disease creates some sympathy. That's all we need here. Some understanding for our disease.
Dear Friend,.
Thank you for your support in signing our petition (it can be done anonymously)
http://www.bloodbornebodyodorandhalitos ... nding.html
Although (secondary) TMAU and similar, un-named metabolic disorders are not as rare as the medical profession pretend, we are celebrating Rare Disease Day on Wednesday 29th February by promoting a video made by Dr Cheryl Fields to promote awareness of the condition(s). The video needs to be voted for in order to be aired on CNN. Please support us by voting for this video (it takes a minute to sign up to CNN for this purpose).
http://youtu.be/4SEN0nDtmmA
Also, please forward this e-mail to anyone who may be willing to support our cause.
Thank you
Not sure if you've heard of this yet . AJ mentioned that you'd be interested in connecting with some celebrities to forward our cause . So far I think only Maria has emailed Kevin Krikst (writer i think) http://www.imdb.com/title/tt2091427/plotsummary
http://tinyurl.com/795r7xr
its still in post production so maybe there is a chance to be included in dvd special features ? =)
skunkhugs on skype
I always remind people to remember that MEBO Research represents ALL sufferers of odour anywhere (not just TMAU sufferers!).
Just read about some other positive news too. The Monell Chemical Senses Center (in California) are going to do some research into TMAU. Any research will apply to other metabolic odour conditions also.
The UK media are beginning to find TMAU/odour problems interesting. Here is a post by a journalist looking for a TMAU volunteer for an article:
My name's Emma and I'm a Features Editor for Caters News Agency, which is based in Birmingham.
I write for the national newspapers and women's magazines as well as having contacts with programmes like This Morning.
I understand you are probably bombarded with various requests from the media but I was wondering if you'd be able to help me?
I'm looking to write a piece about TMAU to help raise awareness of the condition so the public have a better understanding of it.
I know there is a bit of a social stigma surrounding TMAU and hopefully the piece could help to change that.
From what I've been reading a lot of doctors don't recognise TMAU so people are often forced to suffer in silence.
I would like to write a sensitive and informative piece about someone who has TMAU.
Would any of your members be interested in speaking to me to share their experience?
Everything would be read back prior to publication and they would also receive a fee for their time and trouble.
they can contact me directly. Either by email or on the numbers below. There's no pressure to go forward if they do get in touch. It would be an informal chat to begin with.
Many thanks,
emma[at]catersnews.com
Emma.
-
- Advanced
- Posts: 134
- Joined: Thu Jun 18, 2009 11:16 pm