ODOR SEMINAR ONINE

[deebo]

Listen in , comment , ask questions , ...
Whether you think you have tmau or Not , we as the malodor community need to know and share our information when possible . This 2nd live webinar is for and by sufferers .
See (hear) you there
From Karen :
Hi everyone

Announcement of a TMAU/FMO3 webinar to take place Sunday 23rd September at 7pm GMT

TMAU/FMO3 webinar featuring Professor Ian Phillips & Professor Elizabeth Shephard
veteran researchers into FMO3 enzyme and TMAU.
webinar hosted by Rob Pleticha of rareconnect.org and Eurordis

The webinar room is here : http://eurordis.emea.acrobat.com/rare_d ... mmunities/
If privacy is an issue enter as a guest or make up a username. no password needed.
Only 50 can be in the room at anytime
Webinar will be recorded and hosted on a public video platform afterwards

The guest speakers will present a talk then take questions from the audience afterwards.
Everyone welcome.

For full details see post in this blog : http://www.bloodbornebodyodorandhalitos ... m-est.html

For your timezone http://www.timezoneconverter.com/cgi-bin/tzc.tzc


Best wishes
Karen

[mike987]

A little confused by the time zones. For anyone else, hope this helps.

http://www.timezoneconverter.com/cgi-bin/tzc.tzc

So as of the time of this posting, the seminar will begin 18 hours from now.

[deebo]

Thanks Mike . next webinar that time converter will be included . Currently the host is not in attendance . Maybe tech difficulties tho .

update ; mehh , reschedule ... this 1st one is mainly to work out bugs before inviting expert to speak on our conditions. watch this space ?

[jess]

Thanx for letting us know deebo. keep us updated!

[deebo]

will do Jess . only 10 people showed for this 1st trial run but the app should hold 50 .

[mike987]

It was 3 am for my time, and I ended up falling asleep before the stream.

Sorry

Was it just a trial then or was it a real seminar?

[deebo]

It was 3 am for my time, and I ended up falling asleep before the stream.

Sorry

Was it just a trial then or was it a real seminar?

it would have been full webinar sans an expert But the host didn't show this time =/

[deebo]

From Karen :
Hi everyone

Announcement of a TMAU/FMO3 webinar to take place Sunday 23rd September at 7pm GMT

TMAU/FMO3 webinar featuring Professor Ian Phillips & Professor Elizabeth Shephard
veteran researchers into FMO3 enzyme and TMAU.
webinar hosted by Rob Pleticha of rareconnect.org and Eurordis

The webinar room is here : http://eurordis.emea.acrobat.com/rare_d ... mmunities/
If privacy is an issue enter as a guest or make up a username. no password needed.
Only 50 can be in the room at anytime
Webinar will be recorded and hosted on a public video platform afterwards

The guest speakers will present a talk then take questions from the audience afterwards.
Everyone welcome.

For full details see post in this blog : http://www.bloodbornebodyodorandhalitos ... m-est.html

For your timezone http://www.timezoneconverter.com/cgi-bin/tzc.tzc


Best wishes
Karen

[deebo]

RareConnect Webinar with Dr. Robin Lachmann, M.D., and his Dietitian . He is the doctor that sees all patients in the UK who have been diagnosed with TMAU1 and TMAU2, and he always sees these patients with his dietitian present to discuss the TMAU protocol, including the diet.
I think this webinar is going to be very informative as well.

We can ask our questions in advance at the RareConnect site, http://www.rareconnect.org/en/community ... pm-uk-time.

Post your questions for webinar with Dr Robin Lachmann : 28 Oct at 7pm UK time - Trimethylaminuria..
www.rareconnect.org
Post your questions for webinar with Dr Robin Lachmann : 28 Oct at 7pm UK time Meet, discuss & support other

BE THERE FOLKS

[deebo]

i just realized tomorrow (today) is the 4th Webinar with Dr Richard Mackay .

If you ever wanted to know something about systemic bb or bo the rareconnect webinars are a great time to ask and share concerns ..Free
As we know ,99% of Dr are clueless about malodor and/or deny its importance in how powerfully it effects our lives and those around us. Ask a specialist on the subject and attend the webinar

eurordis.adobeconnect.com/_a830956913/rare_disease_communities/

more info : The 4th TMAU webinar is taking place on Sunday 2nd Dec at 7pm GMT (check your timezone against GMT). We are pleased to announce that the guest speaker will be Dr Richard Mackay of Christchurch, New Zealand. We are most grateful to him for generously fitting the webinar into his schedule which means he will be speaking at 8am on Monday 3rd Dec his time.

Dr Richard Mackay wrote an excellent overview about TMAU which was published in 2011
Trimethylaminuria : Causes and Diagnosis of a Socially Distressing Condition

The webinar will be a lecture followed by a question and answer session.

[mike987]

Doh.. missed it again.

Anything good?

[deebo]

it'll be posted on the European Organisation for Rare Diseases youtube channel in a few days youtube.com/user/eurordis

the 1st 3 are there already to check out

[deebo]

Webinar this FRIDAY 1st February
5pm GMT (noon EST)
With guest speakers :
George Preti, Ph.D. (Monell Chemical Senses Center)
Paul Fennessey, Ph.D.(University of Colorado Health Sciences Center)
Danielle Reed, Ph.D. (Monell Chemical Senses Center)

since there are only 50 spots in the webinar room ,anyone is invited to post your questions and comments below .

more about them and the webinar :
Titles of slideshows :
Updates on genetics of trimethylaminuria (Danielle Reed)
TMAU : evaluation of individuals with malodor problems (Preti, Fennessey, Reed)

We are delighted to announce the upcoming webinar which will feature 2 researchers who have been eminent in researching and raising awareness of TMAU for many years : George Preti Phd and Dr Paul Fennessey. We are also delighted to have as a guest speaker Danielle Reed Phd, a geneticist at Monell Chemical Senses Center who is currently doing research into TMAU with the small grant awarded by NORD which was raised by the community (Danielle Reed and George Preti, “Revisiting TMAU through exome sequencing,” 1-year grant from the National Organization for Rare Disorders and the Trimethylaminuria Foundation). Everyone is welcome to attend though only 50 places are available. Permission has kindly been granted for the webinar to be recorded and made public.

About George Preti : Monell page for George Preti
Pubmed abstract on TMAU

About Paul Fennessey : Dr Paul Fennessey detail
Pubmed abstract on TMAU

About Danielle Reed : Wikipedia entry for Danielle Reed
Monell webpage for Danielle Reed

Webinar technical details :
Webinar room is here : http://eurordis.emea.acrobat.com/rare_d ... mmunities/
No need to use your real name. No password needed. Sign in as 'guest' if you wish

The webinar is being provided by rareconnect.org, part of Eurordis
Visit the rareconnect.org trimethylaminuria community