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TMAU webinar : George Preti &co (1st Feb noon EST 5pm UK

Posted: Thu Jan 31, 2013 3:19 pm
by blueshoes
TMAU Webinar
Friday 1st Feb
noon EST (5pm UK time)

Guest Speakers :
George Preti
Danielle Reed
Dr Paul Fennessey

Discussions :
Updates on genetics of trimethylaminuria
TMAU : evaluation of individuals with malodor problems

Everyone worldwide welcome
If you can watch youtube videos you should get in the room ok
Only 50 places available

You can ask them questions

more details :
http://bit.ly/Wz1blN

Posted: Thu Jan 31, 2013 10:43 pm
by jess
Thanks for the info.

Posted: Thu Jan 31, 2013 11:59 pm
by deebo
thank you Blueshoes ! the webinar will be here https://eurordis.adobeconnect.com/_a830 ... mmunities/ tomorrow at noon EST . think thats like 10 am PST

BE THERE :!: 8) ask the Experts

Posted: Fri Feb 01, 2013 4:29 pm
by blueshoes
Starts in 30 minutes

webinar room : http://eurordis.emea.acrobat.com/rare_d ... mmunities/

Posted: Sat Mar 02, 2013 10:04 am
by deebo
here is the whole thing . lets hear what you folks think about the state of health care / researchers for our odor conditions https://www.youtube.com/watch?v=TZExedNx5Vo



.

Posted: Sat Mar 02, 2013 1:24 pm
by halitosisux
Just watched the whole thing, and found it utterly fascinating.

I always sense that there has to be a simple lateral way to deal with TMAU (and probably other gut bacteria related systemic odours) . How hard can it be to make a time-released capsule which releases enzymes into the gut that can act like the FMO3 enzyme does in the liver to oxidize the TMA before it gets absorbed into the bloodstream? (Or even FMO3 enzyme itself??)

I'm probably talking simplistic nonsense, but I just can't believe that there isn't something that could be put down into the large intestine that can neutralize the TMA in some way. These researchers are interested in the subject as a whole and how it could probably relate to other more "serious" disorders. If they cured TMAU in a simple way then all their related research would probably all finish too.