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it amazes me that this site has been up for years and no one has ever went to a metabolic disorder specialist or endocrinologist other than maybe tmau sufferers. I'm def going to add it to my check list.
for me, it is the embarrassment of telling someone directly that you have bb. however, the more i read about the condition, the more i realize it means something is not right in your system in some way... and you need to enlist the help of specialists where possible. i used to think the problem was just in my mouth but maybe it isn't. even if it is just in my mouth, something is very wrong. it is a disease.
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