Has anyone tried to contact Undiagnosed Diseases Network?

winter · Post by **winter** » Fri Jul 13, 2018 5:06 pm

If not, can we try to get their help?

"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."

"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."

https://undiagnosed.hms.harvard.edu/

Batman30 · Post by **Batman30** » Mon Jul 16, 2018 7:39 am

I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

winter · Post by **winter** » Tue Jul 17, 2018 6:11 pm

Let me know if they get back to you.

winter · Post by **winter** » Tue Sep 18, 2018 7:15 pm

Batman30 wrote: Mon Jul 16, 2018 7:39 am I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

Any update?

Sue2018 · Post by **Sue2018** » Sat Sep 22, 2018 10:21 pm

winter wrote: Tue Sep 18, 2018 7:15 pm
Batman30 wrote: Mon Jul 16, 2018 7:39 am I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..
Any update?

Following !!

winter · Post by **winter** » Wed Aug 07, 2019 12:11 pm

Batman30 wrote: Mon Jul 16, 2018 7:39 am I’m very interested in this. I’m going to try it out, seeing that regular docs can’t seem to figure it out..

Did you contact them? What did they say?

Shall we also try to ask Doug Lindsay? Even if he is focusing on his own rare disease, he might be able to give us contacts to doctors who might help us.
https://edition-m.cnn.com/2019/07/27/he ... index.html

winter · Post by **winter** » Thu Jun 11, 2020 5:25 pm

No one tried to contact UDN?

simple · Post by **simple** » Fri Apr 30, 2021 8:46 am

Hi Winter, I don’t think chronic bb qualifies for undiagnosed disease symptom, as many already diagnosed diseases cause it.

winter wrote: Fri Jul 13, 2018 5:06 pm If not, can we try to get their help?

"Every year hundreds of men, women and children face uncertainty when healthcare providers are unable to discover the cause for their symptoms."

"The Undiagnosed Diseases Network (UDN) is a research study backed by the National Institutes of Health Common Fund that seeks to provide answers for patients and families affected by these mysterious conditions."

https://undiagnosed.hms.harvard.edu/

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